Chapter 13 Support Groups
Section 2: Advocacy, Education, Support
The following organizations provide consumer advocacy and public education about disabilities. Some also offer social and recreational activities, as well as service projects and peer support.
Ability Connection Oklahoma (United Cerebral Palsy - OKC)
10400 Greenbriar Pl., Ste. 101
Oklahoma City,
OK
73159
800-827-2289 Toll Free
405-759-3562 Voice
Local resources available.
American Diabetes Association
ATTN: National Call Center
1701 N. Beauregard St.
Alexandria,
VA
22311
800-342-2383 Toll Free
AskADA@diabetes.org
www.diabetes.org
For diabetes-related questions or to request a diabetes information packet, call 800-342-2383 or email us at AskADA@diabetes.org. In order to better serve you, please provide your name and address along with your request.
American Diabetes Association - Oklahoma City
3000 United Founders Blvd., Ste. 108
Oklahoma City,
OK
73112
405-840-3881 Voice
405-840-3899 Fax
American Diabetes Association - Tulsa
6600 S. Yale Ave., Ste. 700
Tulsa,
OK
74136
918-492-3839 Voice
918-492-4262 Fax
Brain Injury Association of Oklahoma
P.O. Box 88
Hillsdale,
OK
73743-0088
800-444-6443
brainhelp@braininjuryoklahoma.org
www.braininjuryoklahoma.org
Brain Injury Association of Oklahoma is a private, not-for-profit corporation serving persons with traumatic/acquired brain injuries (TBI/ABI), their families, professionals and the community. This Association is a state chapter affiliate of the national Brain Injury Association, Inc.
The Brain Injury Association of Oklahoma does not support, endorse or recommend any method, treatment, or program for brain injury. They only try to inform you, believing you have the right to know what is available. No endorsement is intended or implied.
CarePoint Inc. of Oklahoma City
A Consortium of AIDS Resources and Education
1200 N. Walker, Ste. 500
Oklahoma City,
OK
73103
800-285-2273 Toll Free
405-232-2437 Voice
405-232-2447 Fax
Information on HIV/AIDS. Case management, housing and utility assistance, nutritionist, mental health services, dental and eye care services, HIV employment program. Serves 405 and 580 area codes of the state.
Specializing in employment and retention services for individuals with HIV and AIDS.
Defeat Diabetes Foundation, Inc.
150 153rd Ave., Ste. 300
Madeira Beach,
FL
33708-1856
877-391-5051 Toll Free
This organization informs, educates and alerts the general public, diabetics, pre-diabetics and elected officials about the disease.
Diabetes Solutions of Oklahoma
3333 NW 63rd St., Ste 100
Oklahoma City,
OK
73118
405-843-4386 Voice
888-665-2741 Fax
Diabetes Solutions offers a variety of programs and resources to address two fundamental needs: Reducing the incidence of diabetes (reducing the incidence of Type 2 Diabetes through prevention, reducing the complications of diabetes through patient and professional education)And improving the quality of life for those who have diabetes.
Epilepsy Association of the Sooner State
711 Stanton L. Young Blvd., Ste. 550
Oklahoma City,
OK
73104-5022
800-503-9864 Toll Free
405-271-3232 Voice
405-271-3366 Fax
epilepsy-ok@prodigy.net
specialhelponline.net/epilepsy-association-of-the-sooner-state/
The Epilepsy Association of Oklahoma provides knowledge and information about the causes and treatments of epilepsy and the many different types of seizures; and provides information and guidance to those with epilepsy, their families and friends.
FamilyConnect
familyconnect@afb.net
www.familyconnect.org
FamilyConnect is an online, multimedia community created by the American Foundation for the Blind (AFB) and the National Association for Parents of Children with Visual Impairments (NAPVI). This site gives parents of visually impaired children a place to support each other, share stories and concerns, and link to local resources. The site also features a mom-authored blog, inspiring video testimonials from families, and articles authored by parents and experts in the field of blindness on multiple disabilities, technology, education, and more. From the personal to the professional, families will find all the resources they need to raise their children from birth to adulthood.
Heartland Council of the Blind
P.O. Box 30335
Midwest City,
OK
73140
405-722-8749 Voice
sandi.webster@cox.net
www.hcbokc.org/
The Heartland Council of the Blind is a group of blind, visually impaired and sighted people from the Central Oklahoma area who come together to socialize, discuss issues related to visual impairment and advocate for a better life for the blind and visually impaired. HCB is a chapter of the Oklahoma Council of the Blind an affiliate of the American Council of the Blind.
Hearts for Hearing
3525 NW 56th St, Suite A-150
Oklahoma City,
OK
73112
405-548-4300 Voice
405-548-4350 fax
Hearts for Hearing is a place for comprehensive hearing health care for all ages. Children who are deaf or hard of hearing can learn to listen and talk just like normal hearing kids. Adults with hearing loss are experiencing renewed hearing and connections with family and friends. They provide the expertise, services and programs for individuals with hearing loss and their families.
Mid-America Paralyzed Veterans of America (MPVA)
6108 N.W. 63 St.
Oklahoma City,
OK
73132
800-321-5041 Toll Free
405-721-7168 Voice
405-721-1829 Fax
mapva@sbcglobal.net
www.mapva.com
The Paralyzed Veterans of America (PVA) is a nonprofit organization chartered by the United States Congress and dedicated to serving the needs of its members.
PVA is a leading advocate for: Quality healthcare, research and education addressing spinal cord injury and dysfunction, benefits, civil rights and opportunities that maximize the independence of our members.
National Alliance on Mental Illness (NAMI) - Oklahoma
1920 N. Drexel Blvd.
Oklahoma City,
OK
73107-3925
800-583-1264 Toll Free
405-230-1900 Voice
405-230-1903 Fax
nami-OK@swbell.net
ok.nami.org
A state resource for up-to-date information or support on mental illness.
National Association for Parents of the Visually Impaired (OK-NAPVI ) - Oklahoma
6116 Gun Hill Way
Oklahoma City,
OK
73132
405-232-4644 Voice
Organization of parents, educators and advocates supporting quality educational services and improved opportunities for children who are blind or visually impaired. Offers parent support, training conferences, resources, recreation and other activities for children and advocacy.
National Federation of the Blind (NFB)
200 East Well Street
at Jernigan Place
Baltimore,
MD
21230
410-659-9314 Voice
410-685-5653 Fax
The National Federation of the Blind is the largest and most influential membership organization of blind people in the United States. The NFB improves blind people's lives through advocacy, education, research, technology, and programs encouraging independence and self-confidence.
National Federation of the Blind (NFB) of Oklahoma
457 N. Blackwelder Avenue
Edmond,
OK
73034
405-600-0695 Voice
National Federation of the Blind of Oklahoma, Central Oklahoma Chapter
PO Box 62
Edmond,
Ok
73083
405-600-0695 Voice
We are a non-profit 501 0 (3) charitable organization striving to seek equality for all blind people in Central Oklahoma. We offer public education about blindness, serve as a source of information and referral, provide literature and publications about blindness, share information about aids and appliances and other adaptive equipment for the blind, support advocacy and protection of civil rights, and offer support for blind persons and their families.
Monthly Chapter Meetings – occur on the second Friday of each month, in Edmond. Call the number listed above for details. Provides opportunities for our members to meet and discuss issues regarding local and national legislation, listen to guest speakers on various topics, share successful methods for living as a blind person, and serves as an opportunity for social networking.
Free Basic Braille Class- A program offering Braille literacy for youth and adults, and parents of blind children and anyone interested in learning to read Braille.
National Organization of Parents of Blind Children
National Federation of the Blind
1800 Johnson St.
Baltimore,
MD
21230
410-659-9314, Ext. 2360
Bcheadle@nfb.org
www.nfb.org/nopbc
Association of parents of children with visual impairments. The organization provides information, support and an opportunity for parents to exchange experiences and resources. The National Federation of the Blind distributes many different magazines, newspapers, newsletters, speeches, reports, books, and other pieces of literature to inform the public (blind and sighted) about the true nature of blindness and about issues of interest to the blind.
Oklahoma AIDS Hotline
800-535-2437 Statewide Hotline
Oklahoma Association of the Deaf
P.O. Box 522
Haskell,
OK
74436-0552
A local resource for information.
Oklahoma City Association of the Deaf
1106 N.W. 15th St
Oklahoma City,
OK
73106
405-685-1126 TDD
405-525-5323 TDD
Oklahoma Council of the Blind
P.O. Box 1476
Oklahoma City, OK 73101
Alternative Mailing Address:
2801 Carlton Way
Oklahoma City,
OK
73120-2802
877-578-6212 Toll Free
okcbinfo@okcb.org
www.okcb.org
Statewide organization of blind individuals, families and friends. Activities include public education on blindness, advocacy, social events, resource information and peer support. Advocacy interests include education, braille services, rehabilitation, employment, transportation, assistive technology, accessibility, support services and civil rights. Affiliate of the American Council of the Blind.
Oklahoma Parents Center
223 North Broadway
P.O. Box 512
Holdenville,
OK
74848
877-553-4332 Toll Free (parents only)
405-379-6015 Voice
405-379-2106 Fax
okparentctr@aol.com
www.oklahomaparentscenter.org
Parents of children with disabilities often need specialized information and skills to help them understand and negotiate their way through the special education maze. Oklahoma Parents Center offers parents one on one assistance with educational issues and concerns. They also hold workshops statewide throughout the year. The center's staffed with parents of children with special needs. They can be contacted for information, resources, training or support.
TARC
2516 E. 71st Street, Suite A
Tulsa,
OK
74136
800-688-8272 Toll Free
918-582-8272 Voice
918-582-3628 Fax
tarc@ddadvocacy.net
www.ddadvocacy.net
TARC is committed to ensuring a high quality of life for Oklahomans with developmental disabilities and their families through education, empowerment, support and advocacy. TARC programs include: ARCCorps recruits and trains volunteer guardians and advocates willing to assist people with developmental disabilities when they are making important decisions that affect their health, safety, and personal development.
ddadvocacy.net is the TARC online presence and is a comprehensive source for Oklahomans seeking information or resources for themselves or others with a disability or wanting to connect with others in similar situations.
Family Support delivers services in both English and Spanish including parent education and training, educational advocacy, assistance in using community resources, and fostering connectedness among families that have members with developmental disabilities.
Oklahoma Advocates Involved in Monitoring (OK-AIM) trains more than 700 volunteers statewide to visit state-funded residences to monitor the quality of the everyday lives of people who have developmental disabilities.
Outreach/Service Management expedites access to the full range of services needed by people with developmental disabilities and their families at critical times in their lives such as the birth of a child with a disability; the diagnosis of a disability in a young child; the entry of a child with a disability into the public school system; transition from the education to the adult service system; and the death of the person primarily responsible for caring for an individual with a disability.
Self-Advocacy promotes the development of social and decision-making skills that enable people with developmental disabilities to live fulfilling, self-directed lives in the community; be contributing members of society; and have the support of a peer group.
TARC - Ada Satellite
124 S. Broadway, Ste. 307
Ada,
OK
74820
580-421-9441 Voice
580-421-9441 Fax
TARC - Oklahoma City Satellite
2915 N. Classen Blvd., Ste. 122
Oklahoma City,
OK
73106-5450
405-557-1878 Voice
405-524-1058 Fax
Tulsa Council of the Blind
Tulsa,
OK
918-355-0842 Voice
j.bailey@cox.net
tulsacounciloftheblind.blogspot.com
The Tulsa Council of the Blind is a chapter of the Oklahoma Council of the Blind. It was created by a group of blind individuals in the 1940s and served several functions. Over the past decades, TCB has been involved in legislative and other forms of advocacy in behalf of blind and visually impaired people, particularly on a local level. We have worked hard to develop public transportation, sidewalks, and acceptance of visually pmpaired people in all aspects of society.
Their monthly meetings are held from 6:00-7:30 pm, on the 2nd Friday of each month at the West Tulsa Free Will Baptist Church in the Family Life Center (2332 S. Nogales Ave, Tulsa, OK. For more information, please go to their website or contact Julie Bailey, 918-355-0842 or email at j.bailey@cox.net.
World Association of Persons with Disabilities
5016 Alan Lane
Oklahoma City,
OK
73135
405-672-4440 Voice
405-672-4441 Fax
execvp@wapd.org
www.wapd.org/chapters/page.php?cid=14
The Oklahoma State Chapter of the World Association of Persons with Disabilities (WAPD), a not for profit, non-political entity that has a mission to help all disabled persons of the Sooner State with current and up to date information; advocacy that will provide strong support to their daily lives.
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