Chapter 7: Information Sources


Section 3: Specific Disabilities – Information Sources


Subsection: National Disability Organizations

National Center for Learning Disabilities

The mission of NCLD is to improve the lives of the 1 in 5 children and adults nationwide with learning and attention issues—by empowering parents and young adults, transforming schools and advocating for equal rights and opportunities.

1 Thomas Circle NW, #700
Washington , DC 20005

National Clearinghouse of Rehabilitation Training Materials (NCRTM)

The NCRTM offers the vocational rehabilitation and education communities, grantees, researchers, trainers and practitioners the opportunity to gain visibility for their work, while contributing new knowledge to their specific fields.

103 W. Broad St., Suite 400
Falls Church , VA 22046

National Consortium of Physical Education and Recreation for Individuals with Disabilities

The mission of the National Consortium for Physical Education for Individuals with Disabilities (Consortium) is to promote, stimulate, and encourage legislative mandates, professional preparation, advocacy, and research in physical activity, physical education and recreation for individuals with disabilities.

E224 Park Center SUNY Cortland
Cortland , NY 13045

National Consortium on Deaf-Blindness (NCDB)

NCDB is part of a network of projects for children and youth with deaf-blindness (birth through 21) that includes state deaf-blind projects in every state, as well as Puerto Rico, the District of Columbia, the Pacific Basin, and the Virgin Islands.

Helen Keller National Center
141 Middle Neck Road
Sands Point , NY 11050

Voice: 

541-800-0412

National Council for Community Behavioral Healthcare

A not-for-profit 501(c)(3) association, the National Council for Behavioral Health’s mission is to advance our members’ ability to deliver integrated health care.

1400 K Street NW, Suite 400
Washington , DC 20005

Voice: 

202-684-7457

National Disability Rights Network (NDRN)

The National Disability Rights Network (NDRN) is the nonprofit membership organization for the federally mandated Protection and Advocacy Systems and Client Assistance Programs (CAP) for individuals with disabilities.

820 First Street NE, Suite 740
Washington , DC 20002

Voice: 

202-408-9514

TTY: 

202-408-9521

Fax: 

202-408-9520

National Down Syndrome Society

The National Down Syndrome Society is the leading human rights organization for all individuals with Down syndrome.

8 E 41st Street, 8th Floor
New York , NY 10017

Toll Free: 

800-221-4602

Fax: 

646-870-9320

National Federation of the Blind (NFB)

The National Federation of the Blind is the oldest and largest nationwide organization of blind Americans. The NFB consists of affiliates, chapters, and divisions in all fifty states, Washington, DC, and Puerto Rico.

200 East Well Street at Jernigan Place
Baltimore , MD 21230

Voice: 

410-659-9314

Fax: 

410-685-5653

National Hemophilia Foundation

The National Hemophilia Foundation (NHF) is dedicated to finding better treatments and cures for inheritable bleeding disorders and to preventing the complications of these disorders through education, advocacy and research.

7 Penn Plaza, Suite 1204
New York , NY 10001

Voice: 

212-328-3700

Fax: 

212-328-3777

National Industries for the Blind (NIB)

NIB’s mission is to enhance the personal and economic independence of people who are blind, primarily through creating, sustaining, and improving employment. NIB is the nation’s largest employment resource for people who are blind, and through its network of associated nonprofit agencies, is the largest employer of people who are blind in the country.

3000 Potomac Avenue
Alexandria , VA 22305

Voice: 

703-310-0500

National Library Service for the Blind and Physically Handicapped

.The National Library Service for the Blind and Print Disabled (NLS), Library of Congress, administers a free national library program that provides braille and recorded materials to people who cannot see regular print or handle print materials.

Library of Congress
1291 Taylor St. N.W.
Washington , DC 20542

Voice: 

202-707-5100

Toll Free: 

888-657-7323 To connect to a local library
800-424-8567

Fax: 

202-707-0712

National Multiple Sclerosis Society (NMSS)

The mission of National Multiple Sclerosis Society is so people affected by MS can live their best lives as we stop MS in its tracks, restore what has been lost and end MS forever.

Toll Free: 

800-344-4867

National Organization for Albinism and Hypopigmentation (NOAH)

National Organization for Albinism and Hypopigmentation’s mission is to act as a conduit for accurate and authoritative information about all aspects of living with albinism and to provide a place where people with albinism and their families in the U.S. and Canada can find acceptance, support and fellowship.

P.O. Box 959
East Hampstead , NJ 03826-0959

Voice: 

603-887-2310

Toll Free: 

800 473-2310 (US and Canada)

Fax: 

603-887-6049

National Organization of Social Security Claimants' Representatives (NOSSCR)

The National Organization of Social Security Claimants' Representatives (NOSSCR) is committed to providing the highest quality representation and advocacy on behalf of persons who are seeking Social Security and Supplemental Security Income.

Main Office
161 Airport Executive Park
Nanuet , NY 10954

Voice: 

845-682-1880

Fax: 

845-517-2277

National Organization on Disability (NOD)

The National Organization on Disability (NOD) is a private, non-profit organization that promotes the full participation and contributions of America’s 57 million people with disabilities in all aspects of life.

77 Water Street, Suite 204
New York , NY 10005

Voice: 

646-505-1191

Fax: 

646-505-1184

National Rehabilitation Association (NRA)

The National Rehabilitation Association (NRA) is the oldest professional member organization in the United States that advocates for the rights of individuals with disabilities while also promoting high quality, ethical, and collaborative practice across the rehabilitation profession. NRA, comprised of counselors, educators, researchers, and diverse agents of community integration, is committed to continuously impacting and improving upon the multifaceted conditions, across their society, necessary to enhance quality of life of individuals with disabilities, their families, and communities.

National Rehabilitation Association (NRA)
P.O. Box 150235
Alexandria , VA 22315

Voice: 

703-836-0850

Toll Free: 

888-258-4295

Fax: 

703-836-0848

National Rehabilitation Hospital (MedStar)

National Rehabilitation Hospital specializes in treating persons with physical disabilities caused by spinal cord and head injuries, stroke, arthritis, amputation, multiple sclerosis, post-polio syndrome, and other neurological and orthopedic conditions.

National Rehabilitation Hospital (MedStar)
102 Irving St., N.W.
Washington , DC 20010

Voice: 

202-877-1000

National Therapeutic Recreation Society (NTRS)

The National Therapeutic Recreation Society is a branch of the National Recreation and Park Association. NTRS specializes in the provision of therapeutic recreation services for persons with disabilities in clinical facilities and in the community. NTRS members include practitioners, administrators, educators, volunteers, students, and consumers.

22377 Belmont Ridge Rd.
Ashburn , VA 20148-4501

Voice: 

703-858-0784

Toll Free: 

800-626-6772

Office of Special Education and Rehabilitative Services (OSERS)

The Office of Special Education and Rehabilitative Services (OSERS) understands the many challenges still facing individuals with disabilities and their families. Therefore, OSERS works to improving results and outcomes for people with disabilities of all ages. OSERS supports programs that serve millions of children, youth and adults with disabilities.

U.S. Department of Education
400 Maryland Ave., S.W.
Washington , DC 20202-7100

Voice: 

202-245-7468

Paralyzed Veterans of America (PVA)

Paralyzed Veterans of America works to maximize the quality of life for its members and all people with spinal cord injury/disorders (SCI/D) as a leading advocate for health care, SCI/D research and education, veterans benefits and rights, accessibility and the removal of architectural barriers, sports programs and disability rights.

801 18th St., N.W.
Washington , DC 20006-3517

TTY: 

800-795-4327

Toll Free: 

800-424-8200

Rehabilitation Engineering and Assistive Technology Society of North America (RESNA)

Rehabilitation Engineering and Assistive Technology Society of North America (RESNA) is the premier professional organization dedicated to promoting the health and well-being of people with disabilities through increasing access to technology solutions. RESNA advances the field by offering certification, continuing education, and professional development; developing assistive technology standards; promoting research and public policy; and sponsoring forums for the exchange of information and ideas to meet the needs of our multidisciplinary constituency. RESNA is a 501 (c) 3 not-for-profit membership association.

2025 M Street NW
Washington , DC 20036

Voice: 

202-367-1121

Fax: 

202-367-2121

Rehabilitation Services Administration (RSA)

The Rehabilitation Services Administration (RSA) oversees grant programs that help individuals with physical or mental disabilities to obtain employment and live more independently through the provision of such supports as counseling, medical and psychological services, job training and other individualized services.

400 Maryland Ave., S.W.
Washington , DC 20202-2800

Voice: 

202-245-7488

SourceAmerica (formerly NISH)

Through their network of nonprofits, SourceAmerica supplies products and services that meet the strictest quality standards, all at a competitive price. They match government and commercial contracts for work with nonprofits that employ a dedicated workforce to get the job done—people with significant disabilities.

8401 Old Courthouse Rd
Vienna , VA 22182

Toll Free: 

888-411-8424

Spina Bifida Association (SBA)

The mission of the Spina Bifida Association is to build a better and brighter future for all those impacted by Spina Bifida.

1600 Wilson Blvd, Suite 800
Arlington , VA 22209

Toll Free: 

800-621-3141

Title II Community AIDS National Network

The mission of the Community Access National Network (CANN) is to define, promote, and improve access to healthcare services and supports for people living with HIV/AIDS and/or viral hepatitis through advocacy, education, and networking.

1724 Florida Avenue, NW
Washington , DC 20009

Traumatic Brain Injury Technical Assistance Center

National Association of State Head Injury Administrators (NASHIA) offers a comprehensive list of consultation services for state governments and their partner organizations. Our team understands the specific needs of state governments and nuances associated with building service delivery systems and capacity for individuals with brain injuries, and their families.

PO Box 1878
Alabaster , AL 35007

Voice: 

202-681-7840

United Cerebral Palsy (UCP)

The purpose of United Cerebral Palsy (UCP) is to promote the independence, productivity and full citizenship of people with cerebral palsy, intellectual and developmental disabilities, and other conditions, through an affiliate network.

1825 K Street NW, Suite 600
Washington , DC 20006

Voice: 

202-776-0406

United States Access Board

The U.S. Access Board is a federal agency that promotes equality for people with disabilities through leadership in accessible design and the development of accessibility guidelines and standards for the built environment, transportation, communication, medical diagnostic equipment, and information technology.

1331 F St., N.W. Ste. 1000
Washington , DC 20004-1111

Voice: 

202-272-0080

TTY: 

202-272-0082
800-993-2822

Toll Free: 

800-872-2253

Fax: 

202-272-0081

US Psychiatric Rehabilitation Association (USPRA)

Psychiatric Rehabilitation Association (PRA) is the premiere membership organization for the worldwide recovery workforce, advocating for the field on the Federal and State level here in the US, certifying professional expertise in psychiatric rehabilitation (with the CPRP and/or CFRP credentials), and providing a local community for those in the workforce through component relations (state chapters and affiliates).

7918 Jones Branch Drive, Suite 300
McLean , VA 22102

Voice: 

703-442-2078 For Urgent Assistance

VSA Arts John F Kennedy Center for the Performing Arts

An international organization offering arts-based programs in creative writing, dance, drama, music, and the visual arts. A variety of programs are offered through VSArts state affiliate organizations. Provides an online art gallery for the work of artists with disabilities. Sponsors arts festivals, Legacy art program for older adults, playwright discovery award, Young Soloists Award, arts programs for children, and events that showcase the talent of artists with disabilities. Provides an arts, disability and education searchable database with links to resources nationwide.

The VSA arts International Young Soloists Award annually recognizes outstanding young musicians with disabilities and supports and encourages them in their pursuit of a career. All types of music are accepted - country, classical, jazz, rap, rock, bluegrass, world, etc. A committee of distinguished music professionals selects the award recipients who receive $5,000 and the opportunity to perform in Washington, D.C.

2700 F Street, NW
Washington , DC 20566

Voice: 

202-467-4600

World Institute on Disability (WID)

The World Institute on Disability is an internationally recognized public policy center organized by and for people with disabilities. It's work centers around Digital Tools for Optimizing Community Living and Employment; Accessibility Solutions; and Excellence in Disability Inclusive Emergency Preparedness, Disaster Risk Reduction, and Climate Resilience.

3075 Adeline Street, Suite 155
Berkeley , CA 94703

Voice: 

510-225-6400

Fax: 

510-225-0477

World Services for the Blind

World Services for the Blind's mission is to empower people who are blind and visually impaired to achieve sustainable independence. They offer life skills and career training programs in one location. This approach allows students to receive services tailored specifically to their needs. From essential life skills that ensure an individual’s ability to live independently to technology based career-path programs designed to provide students with the knowledge and hands-on experience that will allow them to compete in today’s high-tech jobs market, their programs put students on the path to sustainable independence.

2811 Fair Park Boulevard
Little Rock , AR 72204

Voice: 

501-664-7100

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